Nazzareno, 52 years old. Autonomy in daily life for a person with ALS

Record number: 366
Last update: July 2011
Type of document: Case studies/experiences
Author: Restano Magazzini L
Editorial data: Portale SIVA FondazioneDon Carlo Gnocchi
Year of publication: 2009
Abstract:
Nazzareno is a man aged 52 that in 2004 was diagnosed with Amyotrophic Lateral Sclerosis. In 2006 he started using a PEG, and since 2007 is tracheostomized and has undergone invasive mechanical ventilation (VMI). He and his family are supported by local services, and Nazzareno is highly motivated to maintain communication skills with family, friends and professionals. Since May 2005 he’s followed by a multidisciplinary staff of the Communication Aids Centre Laboratory: according to the progression of the disease, many software and hardware solutions were found and implemented.
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