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Cernigoi G
Gaia, age 72, motor disability: improving independence at home
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Gaia's severe impairment of both vital and motor functions, the cognitive ones excluded, was caused by an acute cerebral vascular accident. This experience deals with the patient's home reintegration and home care, aimed to assure her a good quality of life within her family. It is extremely important searching for a solution together with Gaia's family, that will take care of her in the daily life. Besides, a solution must be found out shortly because of the forthcoming discharge of the patient. The global evaluation of the domestic environment, the provision of the early assistive devices and Gaia's family training are only the first step in her life reorganization process, that will be extended, checked and improved according to the future needs.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: February 2005
Gaia, age 72, motor disability: improving independence at home
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Gaia's severe impairment of both vital and motor functions, the cognitive ones excluded, was caused by an acute cerebral vascular accident. This experience deals with the patient's home reintegration and home care, aimed to assure her a good quality of life within her family. It is extremely important searching for a solution together with Gaia's family, that will take care of her in the daily life. Besides, a solution must be found out shortly because of the forthcoming discharge of the patient. The global evaluation of the domestic environment, the provision of the early assistive devices and Gaia's family training are only the first step in her life reorganization process, that will be extended, checked and improved according to the future needs.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: February 2005
Diozzi L
Mario, 63 years old. Autonomy in daily life for a person with ALS
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: In March 2004, Mario was diagnosed with Amyotrophic Lateral Sclerosis. From the moment the diagnosis was announced, Mario and his wife took initiative using the facilities of the National Law abatement barrier 13/89, thus installing a platform lift, and changing and partially renovating their apartment . Mario used both aids provided by the National Health System and creative and smart devices. Thanks to these solutions, Mario succeeded in fulfilling his desire of living comfortably at home and in the neighbourhood, until his death, occurred in July 2006.
Year of publication: 2006
Type of document: Case studies/experiences
Last update: July 2011
Mario, 63 years old. Autonomy in daily life for a person with ALS
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: In March 2004, Mario was diagnosed with Amyotrophic Lateral Sclerosis. From the moment the diagnosis was announced, Mario and his wife took initiative using the facilities of the National Law abatement barrier 13/89, thus installing a platform lift, and changing and partially renovating their apartment . Mario used both aids provided by the National Health System and creative and smart devices. Thanks to these solutions, Mario succeeded in fulfilling his desire of living comfortably at home and in the neighbourhood, until his death, occurred in July 2006.
Year of publication: 2006
Type of document: Case studies/experiences
Last update: July 2011
Festi C
Roberta, 43 years old. Autonomy in daily life for a person with Multiple Sclerosis
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi
Abstract: Roberta is a young woman suffering from multiple sclerosis, characterized by hypertension, with tetraparesis, dysarthria and dysphagia. Roberta can’t express herself well and family members considered the proposal for a possible program aimed at improving communication: we have thus undertaken in collaboration with the Regional Centre for Assistive for AT a project aimed at evaluating a system of alternative communication. In parallel, the area of intervention has gradually expanded to include mobility and posture, in order to find solutions designed to lighten the load of assistive care and to improve comfort. Roberta is currently dependent in all activities of daily life and is no longer able to cooperate during transfers, thus totally charging her husband and the personal assistant. The seating system is no longer appropriate and Roberta prefers to remain lying on the sofa for most of the day: in this regard we have proposed a wheelchair with postural system in order to allow her to stay seated for several hours. The aim of this paper is to illustrate the path taken with Roberta to enhance her social participation and, if possible, prevent the risk of isolation. Through the integration of different skills and the service network, we would like to propose a global approach, not only oriented to the provision of services, but to the maximum autonomy as possible.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: May 2013
Roberta, 43 years old. Autonomy in daily life for a person with Multiple Sclerosis
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi
Abstract: Roberta is a young woman suffering from multiple sclerosis, characterized by hypertension, with tetraparesis, dysarthria and dysphagia. Roberta can’t express herself well and family members considered the proposal for a possible program aimed at improving communication: we have thus undertaken in collaboration with the Regional Centre for Assistive for AT a project aimed at evaluating a system of alternative communication. In parallel, the area of intervention has gradually expanded to include mobility and posture, in order to find solutions designed to lighten the load of assistive care and to improve comfort. Roberta is currently dependent in all activities of daily life and is no longer able to cooperate during transfers, thus totally charging her husband and the personal assistant. The seating system is no longer appropriate and Roberta prefers to remain lying on the sofa for most of the day: in this regard we have proposed a wheelchair with postural system in order to allow her to stay seated for several hours. The aim of this paper is to illustrate the path taken with Roberta to enhance her social participation and, if possible, prevent the risk of isolation. Through the integration of different skills and the service network, we would like to propose a global approach, not only oriented to the provision of services, but to the maximum autonomy as possible.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: May 2013
Porcella B
Gabriele, age 56, motor disability: improving independence in communication by means of eye-gaze
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Gabriele: a clear and subtle mind trapped in a body that doesn't respond to commands. An ictus relegated him to the immobility and to a persistent silence from which he would like to escape, satisfying his fundamental needs: communication, interaction with the world, expression of feelings and thoughts. Gabriele can only communicate through his eyelids: looking up means yes, half-opening the eyes means no. With a 21 yellow and green letters table, he becomes a marksman of the alphabet. Yet his disease has been finally defeated by the patient's will and motivation and by the intelligence of the carers who believed in new technologies. This experience presents the experimentation results of a new eye-blink driven sensor for PC.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: February 2005
Gabriele, age 56, motor disability: improving independence in communication by means of eye-gaze
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Gabriele: a clear and subtle mind trapped in a body that doesn't respond to commands. An ictus relegated him to the immobility and to a persistent silence from which he would like to escape, satisfying his fundamental needs: communication, interaction with the world, expression of feelings and thoughts. Gabriele can only communicate through his eyelids: looking up means yes, half-opening the eyes means no. With a 21 yellow and green letters table, he becomes a marksman of the alphabet. Yet his disease has been finally defeated by the patient's will and motivation and by the intelligence of the carers who believed in new technologies. This experience presents the experimentation results of a new eye-blink driven sensor for PC.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: February 2005
Sanrocchi S
Francesco, 50 years old. Autonomy in daily life for a person with an outcome of stroke
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi
Abstract: Francesco is aged 50 and in 2005 had a cerebral hemorrhage, that damaged both the motor abilities, resulting in hemiplegia, with aphasia and cognitive abilities, with aphasia, attention and body image disorders. This project aims to bring attention to the path that was made by Francesco, his family and all professionals who followed him. The hardest part of this work was the family’s acceptation of an unexpected situation, leading to a sudden new planning of life in general. Thanks to a close collaboration with the family and especially a strong motivation by Francesco, the solutions adopted granted a better quality of life for him. The main objectives of this project were the provision of aids and then the return home of Francesco, more and more the protagonist of his own choices.
Year of publication: 2007
Type of document: Case studies/experiences
Last update: May 2013
Francesco, 50 years old. Autonomy in daily life for a person with an outcome of stroke
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi
Abstract: Francesco is aged 50 and in 2005 had a cerebral hemorrhage, that damaged both the motor abilities, resulting in hemiplegia, with aphasia and cognitive abilities, with aphasia, attention and body image disorders. This project aims to bring attention to the path that was made by Francesco, his family and all professionals who followed him. The hardest part of this work was the family’s acceptation of an unexpected situation, leading to a sudden new planning of life in general. Thanks to a close collaboration with the family and especially a strong motivation by Francesco, the solutions adopted granted a better quality of life for him. The main objectives of this project were the provision of aids and then the return home of Francesco, more and more the protagonist of his own choices.
Year of publication: 2007
Type of document: Case studies/experiences
Last update: May 2013