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Ciot C
Pietro, age 7, motor disability: improving independence in communication
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Pietro is 6 years old and he is affected by dystonic quadriplegia and impaired upper limb functionality; he can articulate just a few words, but shows a good level of comprehension. This paper describes the way towards autonomy that the child, his family and the caregivers experienced together. At the beginning, parting from the mother was a great effort for the children, who expressed his discomfort rejecting unknown people and environments. Later, the emotional instability gradually decreased; Pietro became conscious of his abilities, he found fulfilment in them and his interests increased. Therefore it was possible to start a project aiming to the evaluation of assistive devices allowing Pietro to interact with the environment and actively take part in educational activities. An orthosis, keeping the thumb and the wrist aligned, was prescribed for the less impaired arm. In this way Pietro, who was already able to use a device with automatic scansion, could use a communication aid whose vocal output was activated by the pressure of a button. Besides, a multimedia "open" software for the creation of customized educational unities was chosen. Finally, Pietro was given a postural wheelchair allowing the carriage of the communicator and the use of the computer without tiring transfers from the push-chair to the wheelchair.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: February 2005
Pietro, age 7, motor disability: improving independence in communication
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Pietro is 6 years old and he is affected by dystonic quadriplegia and impaired upper limb functionality; he can articulate just a few words, but shows a good level of comprehension. This paper describes the way towards autonomy that the child, his family and the caregivers experienced together. At the beginning, parting from the mother was a great effort for the children, who expressed his discomfort rejecting unknown people and environments. Later, the emotional instability gradually decreased; Pietro became conscious of his abilities, he found fulfilment in them and his interests increased. Therefore it was possible to start a project aiming to the evaluation of assistive devices allowing Pietro to interact with the environment and actively take part in educational activities. An orthosis, keeping the thumb and the wrist aligned, was prescribed for the less impaired arm. In this way Pietro, who was already able to use a device with automatic scansion, could use a communication aid whose vocal output was activated by the pressure of a button. Besides, a multimedia "open" software for the creation of customized educational unities was chosen. Finally, Pietro was given a postural wheelchair allowing the carriage of the communicator and the use of the computer without tiring transfers from the push-chair to the wheelchair.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: February 2005
Russolo F
Gabriella, 51 years old. Autonomy in daily life for a person with an outcome of cerebral aneurysm
Editorial data: Portale SIVA FondazioneDon Carlo Gnocchi
Abstract: Gabriella is a woman of 50 years. In October 2007 she was stricken by a cerebral haemorrhage due to rupture of aneurysm. This event led to very serious motor and cognitive damages: Gabriella remains paretic in all 4 limbs, with significant psychomotor slowing, at first carried a PEG.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: July 2011
Gabriella, 51 years old. Autonomy in daily life for a person with an outcome of cerebral aneurysm
Editorial data: Portale SIVA FondazioneDon Carlo Gnocchi
Abstract: Gabriella is a woman of 50 years. In October 2007 she was stricken by a cerebral haemorrhage due to rupture of aneurysm. This event led to very serious motor and cognitive damages: Gabriella remains paretic in all 4 limbs, with significant psychomotor slowing, at first carried a PEG.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: July 2011
Tisot M
Tato, 18 years old. Autonomy in daily life for a person with epidermolysis
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi
Abstract: This paper concerns a case of a 18 years old boy, diagnosed with severe dystrophic epidermolysis, requiring a prescription for a new power wheelchair. Tato attends high school, supported by a teacher for assistance. Tato benefits of home care (nursing), and is followed by various specialists, but there is no meeting point between these various health and social figures. During counselling sessions Tato highlighted the need to have a more active social life outside the family and greater autonomy from the teacher at school. The project, will deal not only with the choice of the wheelchair and its customization, but also with manipulation aspect, the independent use of computer and the evaluation of devices already in use both at home and at school. The aim is also to create a multidisciplinary team of professionals, working in synergy.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: May 2013
Tato, 18 years old. Autonomy in daily life for a person with epidermolysis
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi
Abstract: This paper concerns a case of a 18 years old boy, diagnosed with severe dystrophic epidermolysis, requiring a prescription for a new power wheelchair. Tato attends high school, supported by a teacher for assistance. Tato benefits of home care (nursing), and is followed by various specialists, but there is no meeting point between these various health and social figures. During counselling sessions Tato highlighted the need to have a more active social life outside the family and greater autonomy from the teacher at school. The project, will deal not only with the choice of the wheelchair and its customization, but also with manipulation aspect, the independent use of computer and the evaluation of devices already in use both at home and at school. The aim is also to create a multidisciplinary team of professionals, working in synergy.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: May 2013
Porcella B
In un batter d’occhio...quando per parlare basta una palpebra. Il caso di Gabriele
Editorial data: Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica Milano e Fondazione Don Gnocchi, a.a. 2003-2004
Abstract: (text automatically translated from Italian) Looking towards the? Top to communicate assent, closed semi eyelids to express a no, shiny and sharp mind trapped in a body that does not respond to his commands, a card table with 21 yellow and green letters and Gabriel becomes ? marksman of? alphabet ?. A stroke l? Hit relegating him in? Immobility? and in a stubborn silence from which want to get out to repossess least the possibility to meet the basic need for the? human being to communicate, interact with the world, to express feelings, ideas, thoughts and anger. Pu? do so only with his eyes, the only part of the body, passing all? mutiny after injury. Eventually l? Oxymoron, paradoxically created by a syndrome that has stolen the name to the classical metric but which has the effect of silence, is defeated by the force of will ?, the great motivation of Gabriel and from? Ingenuity of those who believe in new technologies computer. L? Drafted presents the results of the trial? performed on Gabriel? a new sensor for personal computers to be used with the movement of the eyelid.
Year of publication: 2004
Type of document: Thesis
Last update: May 2016
In un batter d’occhio...quando per parlare basta una palpebra. Il caso di Gabriele
Editorial data: Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica Milano e Fondazione Don Gnocchi, a.a. 2003-2004
Abstract: (text automatically translated from Italian) Looking towards the? Top to communicate assent, closed semi eyelids to express a no, shiny and sharp mind trapped in a body that does not respond to his commands, a card table with 21 yellow and green letters and Gabriel becomes ? marksman of? alphabet ?. A stroke l? Hit relegating him in? Immobility? and in a stubborn silence from which want to get out to repossess least the possibility to meet the basic need for the? human being to communicate, interact with the world, to express feelings, ideas, thoughts and anger. Pu? do so only with his eyes, the only part of the body, passing all? mutiny after injury. Eventually l? Oxymoron, paradoxically created by a syndrome that has stolen the name to the classical metric but which has the effect of silence, is defeated by the force of will ?, the great motivation of Gabriel and from? Ingenuity of those who believe in new technologies computer. L? Drafted presents the results of the trial? performed on Gabriel? a new sensor for personal computers to be used with the movement of the eyelid.
Year of publication: 2004
Type of document: Thesis
Last update: May 2016