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Lazzarich C
Emanuele, 10 years old. Autonomy in daily life for a person with Duchenne Muscular Dystrophy
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Emanuele is a child, aged 10, suffering from progressive muscular dystrophy type Duchenne. He lives with his mother, a physiotherapist, that until now has coordinated on her own all professional interventions (physicians, pediatric neurology, pulmonologist, cardiologist, orthopedic technicians, etc..), as a response to the needs of her son. Now Emanuele’s mother is no more able to manage the situation by herself, as it has turned more difficult. We intervened in order to try to support her, focusing on five major issues concerning the autonomy of her son: the power wheelchair, the renovation of the bathroom, the accessibility of the home garden, the environment control and accessibility to personal computer. For each topic a specific project was formulated, each identifying needs, objectives and expected results.
Year of publication: 2006
Type of document: Case studies/experiences
Last update: May 2016
Emanuele, 10 years old. Autonomy in daily life for a person with Duchenne Muscular Dystrophy
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Emanuele is a child, aged 10, suffering from progressive muscular dystrophy type Duchenne. He lives with his mother, a physiotherapist, that until now has coordinated on her own all professional interventions (physicians, pediatric neurology, pulmonologist, cardiologist, orthopedic technicians, etc..), as a response to the needs of her son. Now Emanuele’s mother is no more able to manage the situation by herself, as it has turned more difficult. We intervened in order to try to support her, focusing on five major issues concerning the autonomy of her son: the power wheelchair, the renovation of the bathroom, the accessibility of the home garden, the environment control and accessibility to personal computer. For each topic a specific project was formulated, each identifying needs, objectives and expected results.
Year of publication: 2006
Type of document: Case studies/experiences
Last update: May 2016
Montrucchio L
Marco, age 53, motor disability: improving independence at home and in the neighbourhood
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Despite a progressive and severely disabling disease, the use of suitable aids enabled the patient to keep a good level of independence and to maintain his social relations.
Year of publication: 2003
Type of document: Case studies/experiences
Last update: May 2003
Marco, age 53, motor disability: improving independence at home and in the neighbourhood
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Despite a progressive and severely disabling disease, the use of suitable aids enabled the patient to keep a good level of independence and to maintain his social relations.
Year of publication: 2003
Type of document: Case studies/experiences
Last update: May 2003
Rescigno L
Elena, 15 years old. Autonomy in daily life for a person with an outcome of severe head injury
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi
Abstract: This paper presents the story of a 15 years old girl that one day, apparently similar to another, going out of school has a car accident. The awakening after the four long, agonizing days in a coma reassures her family, but for Elena is just the beginning of a long journey full of changes and of situations in which it is hard to accept a reality and a body that she does not recognize as hers. The paper describes the progressive return of Elena to a life still to be lived and felt though the circumstances have changed. In particular, we focused on the solutions chosen for mobility (wheelchair with the seating system), for the return home (removal of architectural barriers at home), for personal autonomy and communication (alphabetical communicator and later communication software).
Year of publication: 2009
Type of document: Case studies/experiences
Last update: May 2013
Elena, 15 years old. Autonomy in daily life for a person with an outcome of severe head injury
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi
Abstract: This paper presents the story of a 15 years old girl that one day, apparently similar to another, going out of school has a car accident. The awakening after the four long, agonizing days in a coma reassures her family, but for Elena is just the beginning of a long journey full of changes and of situations in which it is hard to accept a reality and a body that she does not recognize as hers. The paper describes the progressive return of Elena to a life still to be lived and felt though the circumstances have changed. In particular, we focused on the solutions chosen for mobility (wheelchair with the seating system), for the return home (removal of architectural barriers at home), for personal autonomy and communication (alphabetical communicator and later communication software).
Year of publication: 2009
Type of document: Case studies/experiences
Last update: May 2013
Buttè M
A small guide to overcome vertical architectural barriers
Editorial data: Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica Milano e Fondazione Don Gnocchi, a.a. 2011-2012
Abstract: There are many solutions to overcome architectural barriers: choice depends on a thorough assessment taking in consideration the type of barrier, the actual needs of the person involved, capabilities and limits of the person with disability, technical aids deployed.
Year of publication: 2012
Type of document: Thesis
Last update: December 2012
A small guide to overcome vertical architectural barriers
Editorial data: Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica Milano e Fondazione Don Gnocchi, a.a. 2011-2012
Abstract: There are many solutions to overcome architectural barriers: choice depends on a thorough assessment taking in consideration the type of barrier, the actual needs of the person involved, capabilities and limits of the person with disability, technical aids deployed.
Year of publication: 2012
Type of document: Thesis
Last update: December 2012
Montrucchio L
E ora che sono rimasto solo?! Il caso di Marco
Editorial data: Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica Milano e Fondazione Don Gnocchi, a.a. 2000-2001
Abstract: (text automatically translated from Italian) Marco 53 years, that suffers from multiple sclerosis ***dall' the age 32 years old, nearly moves exclusively in wheelchair having one nearly supplements absence of voluntary movements to the lower limbs. After the passing of the wife who helped it in the several activities the necessity of a greater freeing is increased in he ***dalla the dependancy; hour is alone and will have to be most possible independent. The activities of the daily life are taken an examination and some solutions are proposed in order to obtain the maximum degree of possible independence are within, are outside house. The objective will be that one to render Marco completely independent in the treatment and hygiene of the own person (with consequent adaptations to the bath), surer in the transfers (thanks to the installation of fixed points of support and to the use of a walker) and independent in the external mobility with the use of one scooter (for ***consentirgli catching up the bar and the church of the country). Thanks to the technology, Marco will be able to take advantage of to the maximum the own residual abilities, conquering a high level of independence with a minimal charitable aid.
Year of publication: 2001
Type of document: Thesis
Last update: May 2003
E ora che sono rimasto solo?! Il caso di Marco
Editorial data: Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica Milano e Fondazione Don Gnocchi, a.a. 2000-2001
Abstract: (text automatically translated from Italian) Marco 53 years, that suffers from multiple sclerosis ***dall' the age 32 years old, nearly moves exclusively in wheelchair having one nearly supplements absence of voluntary movements to the lower limbs. After the passing of the wife who helped it in the several activities the necessity of a greater freeing is increased in he ***dalla the dependancy; hour is alone and will have to be most possible independent. The activities of the daily life are taken an examination and some solutions are proposed in order to obtain the maximum degree of possible independence are within, are outside house. The objective will be that one to render Marco completely independent in the treatment and hygiene of the own person (with consequent adaptations to the bath), surer in the transfers (thanks to the installation of fixed points of support and to the use of a walker) and independent in the external mobility with the use of one scooter (for ***consentirgli catching up the bar and the church of the country). Thanks to the technology, Marco will be able to take advantage of to the maximum the own residual abilities, conquering a high level of independence with a minimal charitable aid.
Year of publication: 2001
Type of document: Thesis
Last update: May 2003