Print list - Library

Castellano G
Alessio, 33 years old. Autonomy in daily life for a person with spastic quadriplegia.
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Alessio is a young man aged 33 with severe spastic quadriplegia, expressive aphasia, nystagmus, as results of a perinatal damage. This study aims to document the path of Alessio and of team of professionals who followed him: this experience involved Alessio’s parents, his caregiver and the whole team of the Centre. Considering the severity of the clinical situation, a multiprofessional approach was needed, in order to improve Alessio situation and to make him more independent, in particular as far as communication was concerned. Alessio has maintained a good level of symbolic cognitive ability, slightly below the norm: although he can’t use verbal language, he has a high understanding and an overall good cognitive functioning. Thanks to his character, his availability and his will, he was able to self determine not only the choice of technological solutions, but his future in general.
Year of publication: 2006
Type of document: Case studies/experiences
Last update: July 2011
Lazzarich C
Emanuele, 10 years old. Autonomy in daily life for a person with Duchenne Muscular Dystrophy
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Emanuele is a child, aged 10, suffering from progressive muscular dystrophy type Duchenne. He lives with his mother, a physiotherapist, that until now has coordinated on her own all professional interventions (physicians, pediatric neurology, pulmonologist, cardiologist, orthopedic technicians, etc..), as a response to the needs of her son. Now Emanuele’s mother is no more able to manage the situation by herself, as it has turned more difficult. We intervened in order to try to support her, focusing on five major issues concerning the autonomy of her son: the power wheelchair, the renovation of the bathroom, the accessibility of the home garden, the environment control and accessibility to personal computer. For each topic a specific project was formulated, each identifying needs, objectives and expected results.
Year of publication: 2006
Type of document: Case studies/experiences
Last update: May 2016
Info updated 28/03/2024 | Fondazione Don Carlo Gnocchi Onlus - P.IVA 12520870150 | E-mail: portale@siva.it