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Beltrami L
Nataly, age 56, motor disability: improving independence at home
Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Comprehensive intervention to maintain the independence of a woman with severe progressive disability by means of assistive aids for mobility and seating, for the bathroom and for the interpersonal communication.
Year of publication: 2003
Type of document: Case studies/experiences
Last update: April 2003
Betto A
Francesco, age 9, motor disability: improving independence at home and school integration
Portale SIVA Fondazione Don Carlo Gnocchi Onlus
(text automatically translated from Italian) Francesco is a child like many, its one family like many. I have chosen like protagonist of this work because in spite of the heavy diagnosis that accompanies it and that it could make to think next to the uselessness of whichever objective, he demonstrates as it is important in its comparisons that all the been involved persons continue to think next to the realization of participations that help the family in the daily fatigues and that they favor in he emerging of the residual abilities to interact with the surrounding environment and the others. Through the reconstruction of the which trod route ***dalla the family and you give many operating ones been involved, through the directory of the solutions that have been adopted, catches a glimpse itself as it is possible to influence positively on the personal lived ones and the motivations that help to search with stubborness of the result that for how many small can change the own vision of the future life. A postural wheelchair that beyond to ***offrirgli a comfortable position allow it to explore with the look and to observe the surrounding space, a walker that facilitates it in the exploration of the environment, a studied project in order to eliminate the architectural barriers of the room, a chair from shower that renders to the mother the treatment of its person less hard, a chair and a table that allows it to be seated to school like the other companions are assistive devices of simple ***reperibilità tu that are found important in order to catch up common objectives of life to all we.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: May 2013
Castellano G
Alessio, 33 years old. Autonomy in daily life for a person with spastic quadriplegia.
Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Alessio is a young man aged 33 with severe spastic quadriplegia, expressive aphasia, nystagmus, as results of a perinatal damage. This study aims to document the path of Alessio and of team of professionals who followed him: this experience involved Alessio’s parents, his caregiver and the whole team of the Centre. Considering the severity of the clinical situation, a multiprofessional approach was needed, in order to improve Alessio situation and to make him more independent, in particular as far as communication was concerned. Alessio has maintained a good level of symbolic cognitive ability, slightly below the norm: although he can’t use verbal language, he has a high understanding and an overall good cognitive functioning. Thanks to his character, his availability and his will, he was able to self determine not only the choice of technological solutions, but his future in general.
Year of publication: 2006
Type of document: Case studies/experiences
Last update: July 2011
Ciot C
Pietro, age 7, motor disability: improving independence in communication
Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Pietro is 6 years old and he is affected by dystonic quadriplegia and impaired upper limb functionality; he can articulate just a few words, but shows a good level of comprehension. This paper describes the way towards autonomy that the child, his family and the caregivers experienced together. At the beginning, parting from the mother was a great effort for the children, who expressed his discomfort rejecting unknown people and environments. Later, the emotional instability gradually decreased; Pietro became conscious of his abilities, he found fulfilment in them and his interests increased. Therefore it was possible to start a project aiming to the evaluation of assistive devices allowing Pietro to interact with the environment and actively take part in educational activities. An orthosis, keeping the thumb and the wrist aligned, was prescribed for the less impaired arm. In this way Pietro, who was already able to use a device with automatic scansion, could use a communication aid whose vocal output was activated by the pressure of a button. Besides, a multimedia "open" software for the creation of customized educational unities was chosen. Finally, Pietro was given a postural wheelchair allowing the carriage of the communicator and the use of the computer without tiring transfers from the push-chair to the wheelchair.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: February 2005
Festi C
Roberta, 43 years old. Autonomy in daily life for a person with Multiple Sclerosis
Portale SIVA Fondazione Don Carlo Gnocchi
Roberta is a young woman suffering from multiple sclerosis, characterized by hypertension, with tetraparesis, dysarthria and dysphagia. Roberta can’t express herself well and family members considered the proposal for a possible program aimed at improving communication: we have thus undertaken in collaboration with the Regional Centre for Assistive for AT a project aimed at evaluating a system of alternative communication. In parallel, the area of intervention has gradually expanded to include mobility and posture, in order to find solutions designed to lighten the load of assistive care and to improve comfort. Roberta is currently dependent in all activities of daily life and is no longer able to cooperate during transfers, thus totally charging her husband and the personal assistant. The seating system is no longer appropriate and Roberta prefers to remain lying on the sofa for most of the day: in this regard we have proposed a wheelchair with postural system in order to allow her to stay seated for several hours. The aim of this paper is to illustrate the path taken with Roberta to enhance her social participation and, if possible, prevent the risk of isolation. Through the integration of different skills and the service network, we would like to propose a global approach, not only oriented to the provision of services, but to the maximum autonomy as possible.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: May 2013
Porcella B
Gabriele, age 56, motor disability: improving independence in communication by means of eye-gaze
Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Gabriele: a clear and subtle mind trapped in a body that doesn't respond to commands. An ictus relegated him to the immobility and to a persistent silence from which he would like to escape, satisfying his fundamental needs: communication, interaction with the world, expression of feelings and thoughts. Gabriele can only communicate through his eyelids: looking up means yes, half-opening the eyes means no. With a 21 yellow and green letters table, he becomes a marksman of the alphabet. Yet his disease has been finally defeated by the patient's will and motivation and by the intelligence of the carers who believed in new technologies. This experience presents the experimentation results of a new eye-blink driven sensor for PC.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: February 2005
Restano Magazzini L
Nazzareno, 52 years old. Autonomy in daily life for a person with ALS
Portale SIVA FondazioneDon Carlo Gnocchi
Nazzareno is a man aged 52 that in 2004 was diagnosed with Amyotrophic Lateral Sclerosis. In 2006 he started using a PEG, and since 2007 is tracheostomized and has undergone invasive mechanical ventilation (VMI). He and his family are supported by local services, and Nazzareno is highly motivated to maintain communication skills with family, friends and professionals. Since May 2005 he’s followed by a multidisciplinary staff of the Communication Aids Centre Laboratory: according to the progression of the disease, many software and hardware solutions were found and implemented.
Year of publication: 2009
Type of document: Case studies/experiences
Last update: July 2011
Avi U H
L’importanza dell’ausilio nella vita sociale di una persona: analisi con gli strumenti QUEST e PIADS
Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica Milano e Fondazione Don Gnocchi, a.a. 2003-2004
(text automatically translated from Italian) The introduction of two instruments of measurement of outcome (the QUEST – ***Quebec User Evaluation of Satisfaction with Assistive Technologies – and the PIADS – ***Psychosocial Assistive ***Impact of ***Devices is proposed Stairs) in an Assistive technology assessment center, situated in the Province Upper Adige and managed ***dalla the social cooperative ***independent L. After little more than an activity year the team sees the necessity to introduce in just the process of assessment on the technological and computer based assistive devices an instrument that gives the just weight to the opinion of the own customers, and that consequently it will carry to an improvement of the activity of the center. The work pursues therefore the scope in the first place translate the instruments also in the German language, in order to guarantee an administration to the entire user bilinguist of the cooperative, to then insert the instruments in the processes of the assessment activity and a precise moment in which the questionnaires subordinates to the user come. At last the two instruments will come proposals to the already existing customers of year 2003 and the work will expose the obtained result.
Year of publication: 2004
Type of document: Thesis
Last update: December 2004
Beltrami L
Nataly: a better quality of life, in spite of everything
Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica Milano e Fondazione Don Gnocchi, a.a. 2001-2002
(text automatically translated from Italian) In 1997 to Nataly, to the age 57 years old, Amyothrophic lateral sclerosis (ALS comes diagnosed one); the disease chases, to year-end Nataly is already not more in a position to communicating orally and in 1998 it more does not succeed to walk. Nataly is widow, the daughters is found ***catapultate in a truth much difficult one without warning to manage and they do not receive ***dalle the institutions that aid, those indications, those advices useful in order to face the situation. They come acquired a bed, a mattress, an antidecubitus sheepskin, a wheelchair, a reducer for WC… they come prescribed and authorized an hoist electrical worker (than the patient it does not have never intentional to use because it is felt “to suffocate”) and a stairclimber for being able to catch up the garden ***dall' the alive apartment where Nataly to the Association of Bologna. In May 2001 one of the daughters is addressed to our service for knowing if assistive devices exist in order to communicate (.***.ha felt something for television.) and from it begins a path that will at domicile carry to a rehabilitation program physiokinesitherapic and to the prescription and supply of assistive devices here (a communicator, one suitable wheelchair for Nataly, one turning chair for bathtub). And for Nataly it improves the quality of life. in spite of everything.
Year of publication: 2002
Type of document: Thesis
Last update: May 2003
Leonzio M
Augmentative and alternative communication in autism
Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica Milano e Fondazione Don Gnocchi, a.a. 2011-2012
Autism is characterized by impaired communication: appropriate AAC interventions, based on visual and technological aids, can strongly improve functional abilities and social interaction.
Year of publication: 2012
Type of document: Thesis
Last update: December 2012
Porcella B
In un batter d’occhio...quando per parlare basta una palpebra. Il caso di Gabriele
Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica Milano e Fondazione Don Gnocchi, a.a. 2003-2004
(text automatically translated from Italian) Looking towards the? Top to communicate assent, closed semi eyelids to express a no, shiny and sharp mind trapped in a body that does not respond to his commands, a card table with 21 yellow and green letters and Gabriel becomes ? marksman of? alphabet ?. A stroke l? Hit relegating him in? Immobility? and in a stubborn silence from which want to get out to repossess least the possibility to meet the basic need for the? human being to communicate, interact with the world, to express feelings, ideas, thoughts and anger. Pu? do so only with his eyes, the only part of the body, passing all? mutiny after injury. Eventually l? Oxymoron, paradoxically created by a syndrome that has stolen the name to the classical metric but which has the effect of silence, is defeated by the force of will ?, the great motivation of Gabriel and from? Ingenuity of those who believe in new technologies computer. L? Drafted presents the results of the trial? performed on Gabriel? a new sensor for personal computers to be used with the movement of the eyelid.
Year of publication: 2004
Type of document: Thesis
Last update: May 2016
Info updated 13/11/2019 | Fondazione Don Carlo Gnocchi Onlus - P.IVA 12520870150 | E-mail: portale@siva.it