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Festi C
Roberta, 43 years old. Autonomy in daily life for a person with Multiple Sclerosis
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi
Abstract: Roberta is a young woman suffering from multiple sclerosis, characterized by hypertension, with tetraparesis, dysarthria and dysphagia. Roberta can’t express herself well and family members considered the proposal for a possible program aimed at improving communication: we have thus undertaken in collaboration with the Regional Centre for Assistive for AT a project aimed at evaluating a system of alternative communication. In parallel, the area of intervention has gradually expanded to include mobility and posture, in order to find solutions designed to lighten the load of assistive care and to improve comfort. Roberta is currently dependent in all activities of daily life and is no longer able to cooperate during transfers, thus totally charging her husband and the personal assistant. The seating system is no longer appropriate and Roberta prefers to remain lying on the sofa for most of the day: in this regard we have proposed a wheelchair with postural system in order to allow her to stay seated for several hours. The aim of this paper is to illustrate the path taken with Roberta to enhance her social participation and, if possible, prevent the risk of isolation. Through the integration of different skills and the service network, we would like to propose a global approach, not only oriented to the provision of services, but to the maximum autonomy as possible.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: May 2013
Roberta, 43 years old. Autonomy in daily life for a person with Multiple Sclerosis
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi
Abstract: Roberta is a young woman suffering from multiple sclerosis, characterized by hypertension, with tetraparesis, dysarthria and dysphagia. Roberta can’t express herself well and family members considered the proposal for a possible program aimed at improving communication: we have thus undertaken in collaboration with the Regional Centre for Assistive for AT a project aimed at evaluating a system of alternative communication. In parallel, the area of intervention has gradually expanded to include mobility and posture, in order to find solutions designed to lighten the load of assistive care and to improve comfort. Roberta is currently dependent in all activities of daily life and is no longer able to cooperate during transfers, thus totally charging her husband and the personal assistant. The seating system is no longer appropriate and Roberta prefers to remain lying on the sofa for most of the day: in this regard we have proposed a wheelchair with postural system in order to allow her to stay seated for several hours. The aim of this paper is to illustrate the path taken with Roberta to enhance her social participation and, if possible, prevent the risk of isolation. Through the integration of different skills and the service network, we would like to propose a global approach, not only oriented to the provision of services, but to the maximum autonomy as possible.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: May 2013
Castellano G
Dal silenzio alla parola. Il caso di Alessio
Editorial data: Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica Milano e Fondazione Don Gnocchi, a.a. 2005-2006
Abstract: (text automatically translated from Italian) ***Alessio is a young person 33 years old with serious spastic tetraparesis, expressive aphasia, nystagmus, which outcomes of damage ***perinata them. This study means to document to the completed path ***dal the young person and ***dagli the operating ones that has followed it; the experience lived with ***Alessio has been involved the team of the Center, the parents and the assistant to domicile that it follows the young person from six years. A ***multiprofessional engagement was necessary in order to face with of problematic of life of ***Alessio, constructing a solid network and a therapeutic alliance first of all with the relatives, such who allowed to those actions times to make ***to evolvere the situation of the young person, in spite of the ***severità of the stabilized clinical panel, from one dependancy situation also on the plan of the communication to its active participation one. ***Alessio has conserved a good cognitive level with symbolic abilities light to the ***disotto to the norm: also not being able to use the oral language it altogether has one elevated understanding and a good cognitive operation. Its character, its availability and its will have rendered it protagonist in the choice not only of technological solutions. We have with to characterized ***Alessio initially more easily reachable objectives and this has produced in he and its parents the opening of one perspective not only of technological participation tu above all one possibility for ***Alessio of living in way qualitatively more ***autodeterminato its future. They have been therefore experienced alternative modalities of communication that, facilitating the ***comunicativo exchange, have given the opportunity to the young person to ask also technical and technological solutions in order to extend the own ability to control on the environment of daily life and the preferred objects like ***tv, video recorder, stereo.
Year of publication: 2006
Type of document: Thesis
Last update: December 2006
Dal silenzio alla parola. Il caso di Alessio
Editorial data: Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica Milano e Fondazione Don Gnocchi, a.a. 2005-2006
Abstract: (text automatically translated from Italian) ***Alessio is a young person 33 years old with serious spastic tetraparesis, expressive aphasia, nystagmus, which outcomes of damage ***perinata them. This study means to document to the completed path ***dal the young person and ***dagli the operating ones that has followed it; the experience lived with ***Alessio has been involved the team of the Center, the parents and the assistant to domicile that it follows the young person from six years. A ***multiprofessional engagement was necessary in order to face with of problematic of life of ***Alessio, constructing a solid network and a therapeutic alliance first of all with the relatives, such who allowed to those actions times to make ***to evolvere the situation of the young person, in spite of the ***severità of the stabilized clinical panel, from one dependancy situation also on the plan of the communication to its active participation one. ***Alessio has conserved a good cognitive level with symbolic abilities light to the ***disotto to the norm: also not being able to use the oral language it altogether has one elevated understanding and a good cognitive operation. Its character, its availability and its will have rendered it protagonist in the choice not only of technological solutions. We have with to characterized ***Alessio initially more easily reachable objectives and this has produced in he and its parents the opening of one perspective not only of technological participation tu above all one possibility for ***Alessio of living in way qualitatively more ***autodeterminato its future. They have been therefore experienced alternative modalities of communication that, facilitating the ***comunicativo exchange, have given the opportunity to the young person to ask also technical and technological solutions in order to extend the own ability to control on the environment of daily life and the preferred objects like ***tv, video recorder, stereo.
Year of publication: 2006
Type of document: Thesis
Last update: December 2006
Lando M.
Aids for computer accessibility
Editorial data: Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica e Fondazione Don Gnocchi, a.a. 2010-2011
Year of publication: 2011
Type of document: Thesis
Last update: December 2011
Aids for computer accessibility
Editorial data: Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica e Fondazione Don Gnocchi, a.a. 2010-2011
Year of publication: 2011
Type of document: Thesis
Last update: December 2011