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Betto A
Francesco, age 9, motor disability: improving independence at home and school integration
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: (text automatically translated from Italian) Francesco is a child like many, its one family like many. I have chosen like protagonist of this work because in spite of the heavy diagnosis that accompanies it and that it could make to think next to the uselessness of whichever objective, he demonstrates as it is important in its comparisons that all the been involved persons continue to think next to the realization of participations that help the family in the daily fatigues and that they favor in he emerging of the residual abilities to interact with the surrounding environment and the others. Through the reconstruction of the which trod route ***dalla the family and you give many operating ones been involved, through the directory of the solutions that have been adopted, catches a glimpse itself as it is possible to influence positively on the personal lived ones and the motivations that help to search with stubborness of the result that for how many small can change the own vision of the future life. A postural wheelchair that beyond to ***offrirgli a comfortable position allow it to explore with the look and to observe the surrounding space, a walker that facilitates it in the exploration of the environment, a studied project in order to eliminate the architectural barriers of the room, a chair from shower that renders to the mother the treatment of its person less hard, a chair and a table that allows it to be seated to school like the other companions are assistive devices of simple ***reperibilità tu that are found important in order to catch up common objectives of life to all we.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: May 2013
Francesco, age 9, motor disability: improving independence at home and school integration
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: (text automatically translated from Italian) Francesco is a child like many, its one family like many. I have chosen like protagonist of this work because in spite of the heavy diagnosis that accompanies it and that it could make to think next to the uselessness of whichever objective, he demonstrates as it is important in its comparisons that all the been involved persons continue to think next to the realization of participations that help the family in the daily fatigues and that they favor in he emerging of the residual abilities to interact with the surrounding environment and the others. Through the reconstruction of the which trod route ***dalla the family and you give many operating ones been involved, through the directory of the solutions that have been adopted, catches a glimpse itself as it is possible to influence positively on the personal lived ones and the motivations that help to search with stubborness of the result that for how many small can change the own vision of the future life. A postural wheelchair that beyond to ***offrirgli a comfortable position allow it to explore with the look and to observe the surrounding space, a walker that facilitates it in the exploration of the environment, a studied project in order to eliminate the architectural barriers of the room, a chair from shower that renders to the mother the treatment of its person less hard, a chair and a table that allows it to be seated to school like the other companions are assistive devices of simple ***reperibilità tu that are found important in order to catch up common objectives of life to all we.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: May 2013
Castellano G
Alessio, 33 years old. Autonomy in daily life for a person with spastic quadriplegia.
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Alessio is a young man aged 33 with severe spastic quadriplegia, expressive aphasia, nystagmus, as results of a perinatal damage. This study aims to document the path of Alessio and of team of professionals who followed him: this experience involved Alessio’s parents, his caregiver and the whole team of the Centre. Considering the severity of the clinical situation, a multiprofessional approach was needed, in order to improve Alessio situation and to make him more independent, in particular as far as communication was concerned. Alessio has maintained a good level of symbolic cognitive ability, slightly below the norm: although he can’t use verbal language, he has a high understanding and an overall good cognitive functioning. Thanks to his character, his availability and his will, he was able to self determine not only the choice of technological solutions, but his future in general.
Year of publication: 2006
Type of document: Case studies/experiences
Last update: July 2011
Alessio, 33 years old. Autonomy in daily life for a person with spastic quadriplegia.
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Alessio is a young man aged 33 with severe spastic quadriplegia, expressive aphasia, nystagmus, as results of a perinatal damage. This study aims to document the path of Alessio and of team of professionals who followed him: this experience involved Alessio’s parents, his caregiver and the whole team of the Centre. Considering the severity of the clinical situation, a multiprofessional approach was needed, in order to improve Alessio situation and to make him more independent, in particular as far as communication was concerned. Alessio has maintained a good level of symbolic cognitive ability, slightly below the norm: although he can’t use verbal language, he has a high understanding and an overall good cognitive functioning. Thanks to his character, his availability and his will, he was able to self determine not only the choice of technological solutions, but his future in general.
Year of publication: 2006
Type of document: Case studies/experiences
Last update: July 2011
Robol E
Paoletto, 14 years old. Autonomy in daily life for a person with Menkes disease
Editorial data: Portale SIVA FondazioneDon Carlo Gnocchi
Abstract: Paoletto today is 14 years old and from his birth is affected by Menkes disease, a rare genetic disease and rapidly progressive. The genetic alteration results in a lack of intestinal absorption and intracellular transport of copper (coenzyme essential to man, especially during the growth and neuromotor development) that leads to a serious damage at neurological, visceral and musculoskeletal levels. Our rehabilitation services started during his first month of life, adopting an integrated approach (neuromotor and speech therapy). The areas of intervention have focused on internal and external mobility (including access to the garden), accessibility to transportation, personal care, posture, e-accessibility and writing, interpersonal communication, integrations of AT within the educational pathways.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: July 2011
Paoletto, 14 years old. Autonomy in daily life for a person with Menkes disease
Editorial data: Portale SIVA FondazioneDon Carlo Gnocchi
Abstract: Paoletto today is 14 years old and from his birth is affected by Menkes disease, a rare genetic disease and rapidly progressive. The genetic alteration results in a lack of intestinal absorption and intracellular transport of copper (coenzyme essential to man, especially during the growth and neuromotor development) that leads to a serious damage at neurological, visceral and musculoskeletal levels. Our rehabilitation services started during his first month of life, adopting an integrated approach (neuromotor and speech therapy). The areas of intervention have focused on internal and external mobility (including access to the garden), accessibility to transportation, personal care, posture, e-accessibility and writing, interpersonal communication, integrations of AT within the educational pathways.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: July 2011
Tonussi E
Clemy, age 52, motor disability: improving independence at home
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Clemy is a 52 year old woman affected by spastic-dystonic tetraplegia as a consequence of perinatal suffering. She is completely independent in personal care, transfers and eating. Since her childhood she has tried to be independent in movements, in her personal choices and most of all in communication. Because of a sudden motor impairment, now Clemy can't use her electronic wheelchair any more and she has difficulties in maintaining the seated posture, which causes pain to her. She also finds it tiring to use the PC that she controls with a metal point fixed to her left foot and a standard keyboards with shield. Clemy would like to be independent in calling for help any time she needs to do it. She also would like to take a weight off her mother, who looks after her during transfers and in the bathroom.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: February 2005
Clemy, age 52, motor disability: improving independence at home
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Clemy is a 52 year old woman affected by spastic-dystonic tetraplegia as a consequence of perinatal suffering. She is completely independent in personal care, transfers and eating. Since her childhood she has tried to be independent in movements, in her personal choices and most of all in communication. Because of a sudden motor impairment, now Clemy can't use her electronic wheelchair any more and she has difficulties in maintaining the seated posture, which causes pain to her. She also finds it tiring to use the PC that she controls with a metal point fixed to her left foot and a standard keyboards with shield. Clemy would like to be independent in calling for help any time she needs to do it. She also would like to take a weight off her mother, who looks after her during transfers and in the bathroom.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: February 2005