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Castellano G
Alessio, 33 years old. Autonomy in daily life for a person with spastic quadriplegia.
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Alessio is a young man aged 33 with severe spastic quadriplegia, expressive aphasia, nystagmus, as results of a perinatal damage. This study aims to document the path of Alessio and of team of professionals who followed him: this experience involved Alessio’s parents, his caregiver and the whole team of the Centre. Considering the severity of the clinical situation, a multiprofessional approach was needed, in order to improve Alessio situation and to make him more independent, in particular as far as communication was concerned. Alessio has maintained a good level of symbolic cognitive ability, slightly below the norm: although he can’t use verbal language, he has a high understanding and an overall good cognitive functioning. Thanks to his character, his availability and his will, he was able to self determine not only the choice of technological solutions, but his future in general.
Year of publication: 2006
Type of document: Case studies/experiences
Last update: July 2011
Alessio, 33 years old. Autonomy in daily life for a person with spastic quadriplegia.
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Alessio is a young man aged 33 with severe spastic quadriplegia, expressive aphasia, nystagmus, as results of a perinatal damage. This study aims to document the path of Alessio and of team of professionals who followed him: this experience involved Alessio’s parents, his caregiver and the whole team of the Centre. Considering the severity of the clinical situation, a multiprofessional approach was needed, in order to improve Alessio situation and to make him more independent, in particular as far as communication was concerned. Alessio has maintained a good level of symbolic cognitive ability, slightly below the norm: although he can’t use verbal language, he has a high understanding and an overall good cognitive functioning. Thanks to his character, his availability and his will, he was able to self determine not only the choice of technological solutions, but his future in general.
Year of publication: 2006
Type of document: Case studies/experiences
Last update: July 2011
Tonussi E
Clemy, age 52, motor disability: improving independence at home
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Clemy is a 52 year old woman affected by spastic-dystonic tetraplegia as a consequence of perinatal suffering. She is completely independent in personal care, transfers and eating. Since her childhood she has tried to be independent in movements, in her personal choices and most of all in communication. Because of a sudden motor impairment, now Clemy can't use her electronic wheelchair any more and she has difficulties in maintaining the seated posture, which causes pain to her. She also finds it tiring to use the PC that she controls with a metal point fixed to her left foot and a standard keyboards with shield. Clemy would like to be independent in calling for help any time she needs to do it. She also would like to take a weight off her mother, who looks after her during transfers and in the bathroom.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: February 2005
Clemy, age 52, motor disability: improving independence at home
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Clemy is a 52 year old woman affected by spastic-dystonic tetraplegia as a consequence of perinatal suffering. She is completely independent in personal care, transfers and eating. Since her childhood she has tried to be independent in movements, in her personal choices and most of all in communication. Because of a sudden motor impairment, now Clemy can't use her electronic wheelchair any more and she has difficulties in maintaining the seated posture, which causes pain to her. She also finds it tiring to use the PC that she controls with a metal point fixed to her left foot and a standard keyboards with shield. Clemy would like to be independent in calling for help any time she needs to do it. She also would like to take a weight off her mother, who looks after her during transfers and in the bathroom.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: February 2005