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Betto A
Francesco, age 9, motor disability: improving independence at home and school integration
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: (text automatically translated from Italian) Francesco is a child like many, its one family like many. I have chosen like protagonist of this work because in spite of the heavy diagnosis that accompanies it and that it could make to think next to the uselessness of whichever objective, he demonstrates as it is important in its comparisons that all the been involved persons continue to think next to the realization of participations that help the family in the daily fatigues and that they favor in he emerging of the residual abilities to interact with the surrounding environment and the others. Through the reconstruction of the which trod route ***dalla the family and you give many operating ones been involved, through the directory of the solutions that have been adopted, catches a glimpse itself as it is possible to influence positively on the personal lived ones and the motivations that help to search with stubborness of the result that for how many small can change the own vision of the future life. A postural wheelchair that beyond to ***offrirgli a comfortable position allow it to explore with the look and to observe the surrounding space, a walker that facilitates it in the exploration of the environment, a studied project in order to eliminate the architectural barriers of the room, a chair from shower that renders to the mother the treatment of its person less hard, a chair and a table that allows it to be seated to school like the other companions are assistive devices of simple ***reperibilità tu that are found important in order to catch up common objectives of life to all we.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: May 2013
Francesco, age 9, motor disability: improving independence at home and school integration
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: (text automatically translated from Italian) Francesco is a child like many, its one family like many. I have chosen like protagonist of this work because in spite of the heavy diagnosis that accompanies it and that it could make to think next to the uselessness of whichever objective, he demonstrates as it is important in its comparisons that all the been involved persons continue to think next to the realization of participations that help the family in the daily fatigues and that they favor in he emerging of the residual abilities to interact with the surrounding environment and the others. Through the reconstruction of the which trod route ***dalla the family and you give many operating ones been involved, through the directory of the solutions that have been adopted, catches a glimpse itself as it is possible to influence positively on the personal lived ones and the motivations that help to search with stubborness of the result that for how many small can change the own vision of the future life. A postural wheelchair that beyond to ***offrirgli a comfortable position allow it to explore with the look and to observe the surrounding space, a walker that facilitates it in the exploration of the environment, a studied project in order to eliminate the architectural barriers of the room, a chair from shower that renders to the mother the treatment of its person less hard, a chair and a table that allows it to be seated to school like the other companions are assistive devices of simple ***reperibilità tu that are found important in order to catch up common objectives of life to all we.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: May 2013
Castellano G
Alessio, 33 years old. Autonomy in daily life for a person with spastic quadriplegia.
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Alessio is a young man aged 33 with severe spastic quadriplegia, expressive aphasia, nystagmus, as results of a perinatal damage. This study aims to document the path of Alessio and of team of professionals who followed him: this experience involved Alessio’s parents, his caregiver and the whole team of the Centre. Considering the severity of the clinical situation, a multiprofessional approach was needed, in order to improve Alessio situation and to make him more independent, in particular as far as communication was concerned. Alessio has maintained a good level of symbolic cognitive ability, slightly below the norm: although he can’t use verbal language, he has a high understanding and an overall good cognitive functioning. Thanks to his character, his availability and his will, he was able to self determine not only the choice of technological solutions, but his future in general.
Year of publication: 2006
Type of document: Case studies/experiences
Last update: July 2011
Alessio, 33 years old. Autonomy in daily life for a person with spastic quadriplegia.
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Alessio is a young man aged 33 with severe spastic quadriplegia, expressive aphasia, nystagmus, as results of a perinatal damage. This study aims to document the path of Alessio and of team of professionals who followed him: this experience involved Alessio’s parents, his caregiver and the whole team of the Centre. Considering the severity of the clinical situation, a multiprofessional approach was needed, in order to improve Alessio situation and to make him more independent, in particular as far as communication was concerned. Alessio has maintained a good level of symbolic cognitive ability, slightly below the norm: although he can’t use verbal language, he has a high understanding and an overall good cognitive functioning. Thanks to his character, his availability and his will, he was able to self determine not only the choice of technological solutions, but his future in general.
Year of publication: 2006
Type of document: Case studies/experiences
Last update: July 2011
Marrocco F
Laura, age 23, motor disability: improving independence in mobility
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: (text automatically translated from Italian) Laura is a girl 22 years old, in 1992 them has been diagnosed the Ataxia of ***Friedreich. The progressive worsening of the symptoms has caused in 1996 the loss total of the deambulation and the necessity to use one wheelchair. In October 2004 it has begun the treatment in Occupational Therapy with the scope to estimate of the independence degree, tu given to the visible postural necessities the primary objective has become the substitution of the wheelchair and the location of an adapted system of posture. ***Dalle the motor assesments and ***dalle the functional assesments are emerged problematic postural that regard the trunk, the pelvis and the limbs are inferiors that advanced. The choice of a wheelchair and a postural system is assumed therefore that can resolve or compensate these problematic ones, that they are easily manageable from Laura and you give to its assistants and that they answer to the ergonomic principles. Once reaped all the necessary information the moment has been introduced to choose the more suitable assistive device. Beyond the personal knowledge and the obtained slight knowledge from several searches, in order to render possible most satisfactory and responsible the choice, the collaboration has been asked for SIVA (Service of Information and Assesment Assistive devices) of the Don Carlo Gnocchi Foundation of Milan. After a series of assessments and it encounters characterized from various tests, modifications and new evidences, one is arrives you to a solution and the indicated assistive device has been demanded through the direct supply of National the Sanitary Service. After the supply of the assistive devices it is proceeded to the training to the use and the management of the system by Laura and its Assistants. The obtained result have been demonstrated more than satisfactory tu the job cannot be considered concluded. It will be necessary to continue the training work in order to find always new such strategies from being able to use and to manage in optimal way the system. Control assesments are previewed that they verify in the time the effectiveness of the system in terms of functionality and independence. It is also important to verify that ***vanga carried out a careful maintenance in such way that the assistive device can always answer to requirement of emergency, effectiveness and stability and is fundamental to verify that, in the time, the expectations of Laura and its assistants regarding the entrusted system remain satisfactory.
Year of publication: 2006
Type of document: Case studies/experiences
Last update: September 2006
Laura, age 23, motor disability: improving independence in mobility
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: (text automatically translated from Italian) Laura is a girl 22 years old, in 1992 them has been diagnosed the Ataxia of ***Friedreich. The progressive worsening of the symptoms has caused in 1996 the loss total of the deambulation and the necessity to use one wheelchair. In October 2004 it has begun the treatment in Occupational Therapy with the scope to estimate of the independence degree, tu given to the visible postural necessities the primary objective has become the substitution of the wheelchair and the location of an adapted system of posture. ***Dalle the motor assesments and ***dalle the functional assesments are emerged problematic postural that regard the trunk, the pelvis and the limbs are inferiors that advanced. The choice of a wheelchair and a postural system is assumed therefore that can resolve or compensate these problematic ones, that they are easily manageable from Laura and you give to its assistants and that they answer to the ergonomic principles. Once reaped all the necessary information the moment has been introduced to choose the more suitable assistive device. Beyond the personal knowledge and the obtained slight knowledge from several searches, in order to render possible most satisfactory and responsible the choice, the collaboration has been asked for SIVA (Service of Information and Assesment Assistive devices) of the Don Carlo Gnocchi Foundation of Milan. After a series of assessments and it encounters characterized from various tests, modifications and new evidences, one is arrives you to a solution and the indicated assistive device has been demanded through the direct supply of National the Sanitary Service. After the supply of the assistive devices it is proceeded to the training to the use and the management of the system by Laura and its Assistants. The obtained result have been demonstrated more than satisfactory tu the job cannot be considered concluded. It will be necessary to continue the training work in order to find always new such strategies from being able to use and to manage in optimal way the system. Control assesments are previewed that they verify in the time the effectiveness of the system in terms of functionality and independence. It is also important to verify that ***vanga carried out a careful maintenance in such way that the assistive device can always answer to requirement of emergency, effectiveness and stability and is fundamental to verify that, in the time, the expectations of Laura and its assistants regarding the entrusted system remain satisfactory.
Year of publication: 2006
Type of document: Case studies/experiences
Last update: September 2006
Robol E
Paoletto, 14 years old. Autonomy in daily life for a person with Menkes disease
Editorial data: Portale SIVA FondazioneDon Carlo Gnocchi
Abstract: Paoletto today is 14 years old and from his birth is affected by Menkes disease, a rare genetic disease and rapidly progressive. The genetic alteration results in a lack of intestinal absorption and intracellular transport of copper (coenzyme essential to man, especially during the growth and neuromotor development) that leads to a serious damage at neurological, visceral and musculoskeletal levels. Our rehabilitation services started during his first month of life, adopting an integrated approach (neuromotor and speech therapy). The areas of intervention have focused on internal and external mobility (including access to the garden), accessibility to transportation, personal care, posture, e-accessibility and writing, interpersonal communication, integrations of AT within the educational pathways.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: July 2011
Paoletto, 14 years old. Autonomy in daily life for a person with Menkes disease
Editorial data: Portale SIVA FondazioneDon Carlo Gnocchi
Abstract: Paoletto today is 14 years old and from his birth is affected by Menkes disease, a rare genetic disease and rapidly progressive. The genetic alteration results in a lack of intestinal absorption and intracellular transport of copper (coenzyme essential to man, especially during the growth and neuromotor development) that leads to a serious damage at neurological, visceral and musculoskeletal levels. Our rehabilitation services started during his first month of life, adopting an integrated approach (neuromotor and speech therapy). The areas of intervention have focused on internal and external mobility (including access to the garden), accessibility to transportation, personal care, posture, e-accessibility and writing, interpersonal communication, integrations of AT within the educational pathways.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: July 2011