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Ciot C
Pietro, age 7, motor disability: improving independence in communication
Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Pietro is 6 years old and he is affected by dystonic quadriplegia and impaired upper limb functionality; he can articulate just a few words, but shows a good level of comprehension. This paper describes the way towards autonomy that the child, his family and the caregivers experienced together. At the beginning, parting from the mother was a great effort for the children, who expressed his discomfort rejecting unknown people and environments. Later, the emotional instability gradually decreased; Pietro became conscious of his abilities, he found fulfilment in them and his interests increased. Therefore it was possible to start a project aiming to the evaluation of assistive devices allowing Pietro to interact with the environment and actively take part in educational activities. An orthosis, keeping the thumb and the wrist aligned, was prescribed for the less impaired arm. In this way Pietro, who was already able to use a device with automatic scansion, could use a communication aid whose vocal output was activated by the pressure of a button. Besides, a multimedia "open" software for the creation of customized educational unities was chosen. Finally, Pietro was given a postural wheelchair allowing the carriage of the communicator and the use of the computer without tiring transfers from the push-chair to the wheelchair.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: February 2005
Russolo F
Gabriella, 51 years old. Autonomy in daily life for a person with an outcome of cerebral aneurysm
Portale SIVA FondazioneDon Carlo Gnocchi
Gabriella is a woman of 50 years. In October 2007 she was stricken by a cerebral haemorrhage due to rupture of aneurysm. This event led to very serious motor and cognitive damages: Gabriella remains paretic in all 4 limbs, with significant psychomotor slowing, at first carried a PEG.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: July 2011
Tisot M
Tato, 18 years old. Autonomy in daily life for a person with epidermolysis
Portale SIVA Fondazione Don Carlo Gnocchi
This paper concerns a case of a 18 years old boy, diagnosed with severe dystrophic epidermolysis, requiring a prescription for a new power wheelchair. Tato attends high school, supported by a teacher for assistance. Tato benefits of home care (nursing), and is followed by various specialists, but there is no meeting point between these various health and social figures. During counselling sessions Tato highlighted the need to have a more active social life outside the family and greater autonomy from the teacher at school. The project, will deal not only with the choice of the wheelchair and its customization, but also with manipulation aspect, the independent use of computer and the evaluation of devices already in use both at home and at school. The aim is also to create a multidisciplinary team of professionals, working in synergy.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: May 2013
Spagnolin A
Seating systems
Dispense Corso di Alta Formazione "Ausili per l'Autonomia e la Partecipazione". Associazione La Nostra Famiglia IRCCS E.Medea
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Year of publication: 2019
Type of document: Lectures
Last update: September 2019
Caracciolo A, Ferrario M
Seating Clinic – Seating Assessment Form
Milano: Fondazione Don Gnocchi, 1999
Assessment and measurement form for the seating position of persons withi disabilities on chairs, wheelchairs and seating systems. The form is based on the findings of a research project carried out in 1996-98 by the Don Gnocchi Foundation within the Biomedical Research Programme of the Italian Ministry of Health.
Year of publication: 1999
Type of document: Tools
Last update: September 2011
Ciot C
Quando si può fare di più che parlare con gli occhi: a piccoli passi verso l’autonomia. Il caso di Pietro
Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica Milano e Fondazione Don Gnocchi, a.a. 2003-2004
(text automatically translated from Italian) Pietro has six years and means and a diagnosis of dystonic and ***anartria tetraparesis, a functionality reduced to the upper limbs and succeed to articulating only some words, tu demonstrate good ability to understanding. The who drew up present reconstructs the route towards the which paced independence ***dal the child, with to its relatives and the operating ones of the rehabilitation center that has it in load. A experience marked initially ***dalla the fatigue to separate ***dalla the mother who expressed with refusing every not familiar person and environment. Then, slowly, the emotional instability has been reduced, Pietro has begun to perceive itself like able making, has known the gratification that derives some, its interests is widens to you. From it has taken to start the finalized project here to define modality and to characterize assistive devices that allowed Pietro to interact with the surrounding environment and to participate actively to the didactic activity. Once verified that, also compromise, the skillful upper limb was the more functional body segment, to Pietro it has been prescribed ortheses in order to maintain to the alignment of the wrist and the finger index. In this way it, than already was in a position to managing a device to automatic scansion, can use a communicator with output in adjustable voice by means of the direct selection of the keys. Moreover for the realization of didactic unit personalized has been characterized multimedia “an open” software. At last it has been proposed a postural wheelchair that, between the other things, will allow it to carry with himself the communicator let alone to carry out the activity to the computer avoiding wearying movements ***dal the pram to the chair as it happened previously.
Year of publication: 2004
Type of document: Thesis
Last update: December 2004
Porcella B
In un batter d’occhio...quando per parlare basta una palpebra. Il caso di Gabriele
Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica Milano e Fondazione Don Gnocchi, a.a. 2003-2004
(text automatically translated from Italian) Looking towards the? Top to communicate assent, closed semi eyelids to express a no, shiny and sharp mind trapped in a body that does not respond to his commands, a card table with 21 yellow and green letters and Gabriel becomes ? marksman of? alphabet ?. A stroke l? Hit relegating him in? Immobility? and in a stubborn silence from which want to get out to repossess least the possibility to meet the basic need for the? human being to communicate, interact with the world, to express feelings, ideas, thoughts and anger. Pu? do so only with his eyes, the only part of the body, passing all? mutiny after injury. Eventually l? Oxymoron, paradoxically created by a syndrome that has stolen the name to the classical metric but which has the effect of silence, is defeated by the force of will ?, the great motivation of Gabriel and from? Ingenuity of those who believe in new technologies computer. L? Drafted presents the results of the trial? performed on Gabriel? a new sensor for personal computers to be used with the movement of the eyelid.
Year of publication: 2004
Type of document: Thesis
Last update: May 2016
Info updated 26/10/2020 | Fondazione Don Carlo Gnocchi Onlus - P.IVA 12520870150 | E-mail: portale@siva.it