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Lazzarich C
Emanuele, 10 years old. Autonomy in daily life for a person with Duchenne Muscular Dystrophy
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Emanuele is a child, aged 10, suffering from progressive muscular dystrophy type Duchenne. He lives with his mother, a physiotherapist, that until now has coordinated on her own all professional interventions (physicians, pediatric neurology, pulmonologist, cardiologist, orthopedic technicians, etc..), as a response to the needs of her son. Now Emanuele’s mother is no more able to manage the situation by herself, as it has turned more difficult. We intervened in order to try to support her, focusing on five major issues concerning the autonomy of her son: the power wheelchair, the renovation of the bathroom, the accessibility of the home garden, the environment control and accessibility to personal computer. For each topic a specific project was formulated, each identifying needs, objectives and expected results.
Year of publication: 2006
Type of document: Case studies/experiences
Last update: May 2016
Pigini L, Liverani G
Bruno, 52 years old. Adaptation of the workplace for an English teacher, with myelopathy
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi
Abstract: Bruno is a man aged 52 suffering from myelopathy with a disability recognized by 100%. Bruno uses a manual wheelchair, and is Professor of English, working at a major international language institute, but now gives English lessons at home, as the disease forces him to stay home for a long time. The type of task he has to carry out in itself is not characterized by a high level of risk but the case highlights some typical aspects of the home adaptation when having a disability. In this short presentation risks and inadequacies for home accessibility are highlighted, as well as the suitable design solution making the workplace more secure and protected.
Year of publication: 2009
Type of document: Case studies/experiences
Last update: May 2013
Info updated 01/05/2024 | Fondazione Don Carlo Gnocchi Onlus - P.IVA 12520870150 | E-mail: portale@siva.it