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Festi C
Roberta, 43 years old. Autonomy in daily life for a person with Multiple Sclerosis
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi
Abstract: Roberta is a young woman suffering from multiple sclerosis, characterized by hypertension, with tetraparesis, dysarthria and dysphagia. Roberta can’t express herself well and family members considered the proposal for a possible program aimed at improving communication: we have thus undertaken in collaboration with the Regional Centre for Assistive for AT a project aimed at evaluating a system of alternative communication. In parallel, the area of intervention has gradually expanded to include mobility and posture, in order to find solutions designed to lighten the load of assistive care and to improve comfort. Roberta is currently dependent in all activities of daily life and is no longer able to cooperate during transfers, thus totally charging her husband and the personal assistant. The seating system is no longer appropriate and Roberta prefers to remain lying on the sofa for most of the day: in this regard we have proposed a wheelchair with postural system in order to allow her to stay seated for several hours. The aim of this paper is to illustrate the path taken with Roberta to enhance her social participation and, if possible, prevent the risk of isolation. Through the integration of different skills and the service network, we would like to propose a global approach, not only oriented to the provision of services, but to the maximum autonomy as possible.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: May 2013
Roberta, 43 years old. Autonomy in daily life for a person with Multiple Sclerosis
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi
Abstract: Roberta is a young woman suffering from multiple sclerosis, characterized by hypertension, with tetraparesis, dysarthria and dysphagia. Roberta can’t express herself well and family members considered the proposal for a possible program aimed at improving communication: we have thus undertaken in collaboration with the Regional Centre for Assistive for AT a project aimed at evaluating a system of alternative communication. In parallel, the area of intervention has gradually expanded to include mobility and posture, in order to find solutions designed to lighten the load of assistive care and to improve comfort. Roberta is currently dependent in all activities of daily life and is no longer able to cooperate during transfers, thus totally charging her husband and the personal assistant. The seating system is no longer appropriate and Roberta prefers to remain lying on the sofa for most of the day: in this regard we have proposed a wheelchair with postural system in order to allow her to stay seated for several hours. The aim of this paper is to illustrate the path taken with Roberta to enhance her social participation and, if possible, prevent the risk of isolation. Through the integration of different skills and the service network, we would like to propose a global approach, not only oriented to the provision of services, but to the maximum autonomy as possible.
Year of publication: 2008
Type of document: Case studies/experiences
Last update: May 2013
Tonussi E
Clemy, age 52, motor disability: improving independence at home
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Clemy is a 52 year old woman affected by spastic-dystonic tetraplegia as a consequence of perinatal suffering. She is completely independent in personal care, transfers and eating. Since her childhood she has tried to be independent in movements, in her personal choices and most of all in communication. Because of a sudden motor impairment, now Clemy can't use her electronic wheelchair any more and she has difficulties in maintaining the seated posture, which causes pain to her. She also finds it tiring to use the PC that she controls with a metal point fixed to her left foot and a standard keyboards with shield. Clemy would like to be independent in calling for help any time she needs to do it. She also would like to take a weight off her mother, who looks after her during transfers and in the bathroom.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: February 2005
Clemy, age 52, motor disability: improving independence at home
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Abstract: Clemy is a 52 year old woman affected by spastic-dystonic tetraplegia as a consequence of perinatal suffering. She is completely independent in personal care, transfers and eating. Since her childhood she has tried to be independent in movements, in her personal choices and most of all in communication. Because of a sudden motor impairment, now Clemy can't use her electronic wheelchair any more and she has difficulties in maintaining the seated posture, which causes pain to her. She also finds it tiring to use the PC that she controls with a metal point fixed to her left foot and a standard keyboards with shield. Clemy would like to be independent in calling for help any time she needs to do it. She also would like to take a weight off her mother, who looks after her during transfers and in the bathroom.
Year of publication: 2005
Type of document: Case studies/experiences
Last update: February 2005