Databases
Services
Submit
Restricted area
“Sapere” aiuta, ma anche “chi sa” ha bisogno di aiuto. Il caso di Emanuele
Record number: 206
Last update: December 2006
Type of document: Thesis
Last update: December 2006
Type of document: Thesis
Author: Lazzarich C
Editorial data: Tesi Corso di Perfezionamento "Tecnologie per l'Autonomia". Università Cattolica Milano e Fondazione Don Gnocchi, a.a. 2005-2006
Year of publication: 2006
Abstract:
(text automatically translated from Italian) Emanuele is a child 10 years old, that suffers from Muscular Dystrophy progressive ***Duchenne type; he lives with the mother, ***fisioterapista, than till now physiatrists have coordinated all the participations specialistics (, infantile, ***pneumologo ***neuropsichiatria, orthopedic cardiologist, technicians, etc) alone, estimating she of time in time the needs of its child and proposing she, to every control, the issues to face; hour the problematic ones have become greater, are for number that for importance, and the mother more does not succeed to manage them all alone (neither is right that the face) for which has been attempted to place side by side it and to support it in focusing and to face five great topics relatives to the independence of its child: the electronic wheelchair, the restructure of the house bath, accessibility of the house garden, the control environment and the access to the personal computer. For every topic it has been formulated a project articulated in four is made, ***dall' the identification of the need, to the formulation of an objective, the definition of a project until the realization of the project. The technical assessment has been precious for this mother how much accompanied having it to take action is of the emergent problems that of the urgency to face them, suggesting to solutions tu in the meanwhile understanding and respecting theirs “***modus vivendi”, theirs to feel emotional and the sense of loss that ***is subentrato with progressing of the disease.
(text automatically translated from Italian) Emanuele is a child 10 years old, that suffers from Muscular Dystrophy progressive ***Duchenne type; he lives with the mother, ***fisioterapista, than till now physiatrists have coordinated all the participations specialistics (, infantile, ***pneumologo ***neuropsichiatria, orthopedic cardiologist, technicians, etc) alone, estimating she of time in time the needs of its child and proposing she, to every control, the issues to face; hour the problematic ones have become greater, are for number that for importance, and the mother more does not succeed to manage them all alone (neither is right that the face) for which has been attempted to place side by side it and to support it in focusing and to face five great topics relatives to the independence of its child: the electronic wheelchair, the restructure of the house bath, accessibility of the house garden, the control environment and the access to the personal computer. For every topic it has been formulated a project articulated in four is made, ***dall' the identification of the need, to the formulation of an objective, the definition of a project until the realization of the project. The technical assessment has been precious for this mother how much accompanied having it to take action is of the emergent problems that of the urgency to face them, suggesting to solutions tu in the meanwhile understanding and respecting theirs “***modus vivendi”, theirs to feel emotional and the sense of loss that ***is subentrato with progressing of the disease.
Downladable documents:
- Tesi Chiara Lazzarich - Corso di perfezionamento "Tecnologie per l'autonomia" aa 2005/2006 File format: pdf (211 KB)
