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Emanuele, 10 years old. Autonomy in daily life for a person with Duchenne Muscular Dystrophy

Record number: 353
Last update: May 2016
Type of document: Case studies/experiences
Author: Lazzarich C
Editorial data: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Year of publication: 2006
Emanuele is a child, aged 10, suffering from progressive muscular dystrophy type Duchenne. He lives with his mother, a physiotherapist, that until now has coordinated on her own all professional interventions (physicians, pediatric neurology, pulmonologist, cardiologist, orthopedic technicians, etc..), as a response to the needs of her son. Now Emanuele’s mother is no more able to manage the situation by herself, as it has turned more difficult. We intervened in order to try to support her, focusing on five major issues concerning the autonomy of her son: the power wheelchair, the renovation of the bathroom, the accessibility of the home garden, the environment control and accessibility to personal computer. For each topic a specific project was formulated, each identifying needs, objectives and expected results.
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